J Korean Acad Soc Nurs Educ.  2020 Nov;26(4):423-433. 10.5977/jkasne.2020.26.4.423.

The lived experience of health-management in patients with Parkinson’s disease

• Son HG
• Park HJ
• Kim SJ
• Han AL

• KMID: 2511053
• DOI: http://doi.org/10.5977/jkasne.2020.26.4.423

Abstract

Purpose
The purpose of this study was to describe the health care experiences among patients with Parkinson’s disease.
Methods
Of the qualitative research methods, Colaizzi’s phenomenological method was used in this study. A total of nine patients, who were diagnosed with Parkinson’s disease and receiving outpatient treatment, were selected as the subjects of this study. Subsequently, data were collected through individual in-depth interview.
Results
The four categories obtained as a result were ‘strenuous efforts to control my own body,’ ‘subject of health that no one can replace,’ ‘focus on the current while expecting a breakthrough in health management,’ and ‘human dignity that cannot be lost to the end.’
Conclusion
The study results are expected to help health care providers deeply understand the experiences in health care among patients with Parkinson’s disease and to provide source data for nursing intervention development that can be helpful in managing the health status of patients with Parkinson’s disease.

Keyword

Parkinson’s disease; Health; Management; Qualitative research; 파킨슨병; 건강관리; 질적연구