Korean J Adult Nurs.  2018 Aug;30(4):394-403. 10.7475/kjan.2018.30.4.394.

Lived Experiences of Elderly Living Alone with Parkinson Disease

Affiliations
  • 1Assistant Professor, Department of Nursing, Daejeon Institute of Science and Technology, Daejeon, Korea.
  • 2Professor, Department of Nursing, Kongju National University, Gongju, Korea. hkkim@kongju.ac.kr

Abstract

PURPOSE
The purpose of this study was to explore in depth the essential structure and meaning of disease experience for the elderly living alone with Parkinson disease, and provide basic data and grounds for national and social support measures and nursing intervention development for them.
METHODS
In this study, van Manen's hermeneutic phenomenological methodology was applied, and data were collected from April to September 2015. Participants were 12 elderly people aged over 65 who live alone in Chungcheongnam-do and Daejeon Metropolitan City and have Parkinson disease. Data were collected until saturation through in-depth interviews and participant observations.
RESULTS
Through analysis of the experience of participants of this study, 7 essential themes and 18 investigated themes were derived in the 4 existing bodies of world of life that they experienced. "Can't accept the disease that came after a hard life", "Catch the hopes", "Feel painful body and soul because my body does not move at will", "Want life and death without pain anymore", "Don't want to reveal my disease to others", "Look for something to rely on and to feel secure", and "Want to return the helps that I received from others" were derived.
CONCLUSION
It is suggested that nursing providers must provide individualized nursing intervention, which the elderly living alone with Parkinson disease truly need, through deep sympathy for their disease experience.


MeSH Terms

Aged*
Chungcheongnam-do
Hermeneutics
Humans
Nursing
Parkinson Disease*

Reference

1. Statistics Korea. Future family type estimation: 2015-2045 [Internet]. Seoul: Statistics Korea;2017. [cited 2018 May 31]. Avaliable from:. http://kostat.go.kr/portal/korea/kor_nw/2/1/index.board?bmode=read&bSeq=&aSeq=359963&pageNo=28&rowNum=10&navCount=10&currPg=&sTarget=title&sTxt=0. http://kostat.go.kr/portal/korea/kor_nw/2/1/index.board?bmode=read&bSeq=&aSeq=359963&pageNo=28&rowNum=10&navCount=10&currPg=&sTarget=title&sTxt=0.
2. Kim HK, Lee HJ, Ju YJ, Park SM. Factors influencing the ego in-tegrity of elders living alone. Journal of Korean Gerontological Nursing. 2009; 11(2):204–15.
3. Chae HT. A Study on the Enhancement Plan of Social Support Network for the Living Alone-Aged inhabiting Rural Region. Social Welfare Policy. 2006; 24(4):225–56.
4. Sohng KY, Lee KS, Choi DW. An analytical study on quality of life and family support of patients with Parkinson's disease. Journal of Korean Academy of Fundamentals of Nursing. 2005; 12(2):231–9.
5. Park SY, Park JS. The influence of family support on the activities of daily living & quality of life among the patients with rheumatoid arthritis. Korean Society of Muscle and Joint Health. 2000; 7(1):63–76.
6. Lee JE, Choi JK, Lim HS, Kim JH, Cho JH, Kim GS, et al. The prevalence and incidence of Parkinson's disease in South Korea: a 10 year nationwide population based study. Journal of Korean Neurological Association. 2017; 35(4):191–8. https://doi.org/10.17340/jkna.2017.4.1.
7. Elbaz A, Bower J, Maraganore D, McDonnell S, Peterson B, Ahlskog J, et al. Risk tables for arkinsonism and Parkinson's disease. Journal of Clinical Epidemiology. 2002; 55(1):25–31. https://doi.org/10.1016/S0895-4356(01)00425-5. https://doi.org/10.1016/S0895-4356(01)00425-5.
8. Wood BH, Bilclough JA, Bowron A, Walker RW. Incidence and prediction of falls in Parkinson's disease: a prospective multi-disciplinary study. Journal of Neurology, Neurosurgery & Psychiatry. 2002; 72:721–25. https://doi.org/10.1136/jnnp.72.6.721.
Article
9. Cahn DA, Sullivan EV, Shear PK, Pfefferbaum A, Heit G, Silverberg G. Differential contributions of cognitive and motor component processes to physical and instrumental activities of daily living in Parkinson's disease. Archives of Clinical Neu-ropsychology. 1998; 13(7):575–83. https://doi.org/10.1016/S0887-6177(98)00024-9. https://doi.org/10.1016/S0887-6177(98)00024-9.
Article
10. Matthew BS. Parkinson's disease and Parkinson-plus syndrome. Lee AY, translator. Seoul: Koonja;2000.
11. McDonald WM, Richard IH, DeLong MR. Prevalence, etiology and treatment of depression in Parkinson's disease. Biological Psychiatry. 2003; 54(3):373–5. https://doi.org/10.1016/S0006-3223(03)00530-4. https://doi.org/10.1016/S0006-3223(03)00530-4.
Article
12. Park YR. Process of seeking positive life of patients with Parkinson's disease. Journal of Korean Academy of Nursing. 2006; 36(5):710–20.
Article
13. Kim SY, Choi MO, Han JT. Analysis of the Elderly with Parkinson's Disease. Korean Journal of Gerontological Social Welfare. 2015; 68:217–50.
14. Kim SR, Lee SJ. Health-illness transition of patients with young- onset Parkinson's disease. Journal of Korean Academy of Nursing. 2013; 43(5):636–48. https://doi.org/10.4040/jkan.2013.43.5.636.
15. van Manen M. From meaning to method. Qualitative Health Research. 1997; 7(3):345–69.
16. Beauchamp TL, Childress JF. Principles of biomedical ethics. 5th ed.New York: Oxford University Press;2001.
17. Manen MV. Researching lived experience: human science for an action sensitive pedagogy. Shin KR, translator. Seoul: Hyun-moon;2000. p. 156–63.
18. Guba EG, Lincoln YS. Effective evaluation: improving the usefulness of evaluation results through responsive and naturalistic approaches. San Francisco: Jossey-Bass;;1981. p. 103–27.
19. Becker C, Brobert GP, Johansson S, Jick SS, Meier CR. Risk of incident depression in patients with Parkinson disease in the UK. European Journal of Neurology. 2011; 18(3):448–53. https://doi.org/10.1111/j.1468-1331.2010.03176.x.
Article
20. Lee YH. Health lifestyle of Korean elders [dissertation]. Seoul: Ewha Womans University;1993. p. 111–15.
21. Goh JK, Hwang IO, Oh HY. The experiences of the newly admitted elderly residents in nursing home. Journal of the Korean Gerontological Society. 2009; 29(2):477–88.
22. Lee YJ, Kim JH, Kim KB. An ethnography on stigma of families having old people admitted to nursing home in Korea. Journal of the Korean Gerontological Society. 2010; 30(3):1005–20.
23. Kim SJ. Factors associated with nursing home selection and family satisfaction in nursing home service [master's thesis]. Seoul: Yonsei University;2007. p. 13.
24. Hwang EH, Kim KH. The sleep experiences of elderly living in the longterm care facilities in Korea. Journal of Qualitative Research. 2015; 16(1):12–20.
Full Text Links
  • KJAN
Actions
Cited
CITED
export Copy
Close
Share
  • Twitter
  • Facebook
Similar articles
Copyright © 2024 by Korean Association of Medical Journal Editors. All rights reserved.     E-mail: koreamed@kamje.or.kr