Ann Rehabil Med.  2018 Oct;42(5):730-736. 10.5535/arm.2018.42.5.730.

Disability Registration State of Children With Cerebral Palsy in Korea

• Kim SW
• Jeon HR
• Kim Y
• Choi SJ
• Youk T
• Kim J

• KMID: 2429202
• DOI: http://doi.org/10.5535/arm.2018.42.5.730

Abstract

OBJECTIVE
To investigate the disability registration state of children with cerebral palsy (CP) in Korea.
METHODS
Based on the National Health Information Database, the disability registration state was examined for brain lesion disability and other possible complicated disabilities accompanying brain disorder in children diagnosed with CP aged up to 5 years old who were born between 2002 and 2008.
RESULTS
Of children diagnosed with CP, 73.1% were registered as having brain lesion disability for the first time before they turned 2 years old. The younger the children, the more likely they will have 1st and 2nd degree disability. However, when the age of children is increased, such likelihood is decreased. The percentage of children registered as having overlapping disabilities was 7%-20%.
CONCLUSION
It is important to establish a more accurate standard to rate disability and provide national support systems for children with CP with various severities and multiple disabilities. By reorganizing the current disability registration system for pediatric brain lesions, the system could serve as a classification standard to provide medical and social welfare services.

Keyword

Cerebral palsy; Disabled children; Registries

MeSH Terms

Brain
Brain Diseases
Cerebral Palsy*
Child*
Classification
Disabled Children
Humans
Korea*
Registries
Social Welfare

Figure

• 

  Fig. 1. Percentage of cerebral palsy children registered as having brain lesion disability by age.

• 

  Fig. 2. Brain lesion disability registration state according to the degree of disability and first-time registration age. Degree of brain lesion disability is rated from 1st to 6th, with 6th being the mildest. Age 0 (≥0 and <12 mo), age 1 (≥12 and <24 mo), age 2 (≥24 and <36 mo), age 3 (≥36 and <48 mo), age 4 (≥48 and <60 mo), and age 5 (≥60 and <72).

Reference

1. Gostin LO. The Americans with Disabilities Act at 25: the highest expression of American values. JAMA. 2015; 313:2231–5.

2. Kim S. The disabled welfare act revision bill and its significance. Health Welf Policy Forum. 2007; 127:34–40.

3. Hwang SK. Understanding the new international classification of disability and introduction of the concept of functional disability. Q J Labor Policy. 2004; 4:128–49.

4. Kim M, Lee I. The effect of functional status and personal assistance services uses on perceived independence among people with physical disabilities. J Korean Social Welf Adm. 2007; 20:53–83.

5. Bax M, Goldstein M, Rosenbaum P, Leviton A, Paneth N, Dan B, et al. Proposed definition and classification of cerebral palsy, April 2005. Dev Med Child Neurol. 2005; 47:571–6.

6. Bottos M, Feliciangeli A, Sciuto L, Gericke C, Vianello A. Functional status of adults with cerebral palsy and implications for treatment of children. Dev Med Child Neurol. 2001; 43:516–28.

7. Hutton JL, Pharoah PO. Effects of cognitive, motor, and sensory disabilities on survival in cerebral palsy. Arch Dis Child. 2002; 86:84–9.

8. Eunson P. The long-term health, social, and financial burden of hypoxic-ischaemic encephalopathy. Dev Med Child Neurol. 2015; 57 Suppl 3:48–50.

9. Kruse M, Michelsen SI, Flachs EM, Bronnum-Hansen H, Madsen M, Uldall P. Lifetime costs of cerebral palsy. Dev Med Child Neurol. 2009; 51:622–8.

10. Ministry of Health and Welfare. Disabled Enrollment. Sejong: Ministry of Health and Welfare;2014.

11. Kirby RS, Wingate MS, Van Naarden Braun K, Doernberg NS, Arneson CL, Benedict RE, et al. Prevalence and functioning of children with cerebral palsy in four areas of the United States in 2006: a report from the Autism and Developmental Disabilities Monitoring Network. Res Dev Disabil. 2011; 32:462–9.

12. Kim S, Lee Y, Hwang J, Oh M, Lee M, Lee N, et al. Survey of disabled persons 2014. Sejong: Ministry of Health and Welfare;2014.

13. Voorman JM, Dallmeijer AJ, Van Eck M, Schuengel C, Becher JG. Social functioning and communication in children with cerebral palsy: association with disease characteristics and personal and environmental factors. Dev Med Child Neurol. 2010; 52:441–7.

14. Tan SS, Wiegerink DJ, Vos RC, Smits DW, Voorman JM, Twisk JW, et al. Developmental trajectories of social participation in individuals with cerebral palsy: a multicentre longitudinal study. Dev Med Child Neurol. 2014; 56:370–7.

15. Fauconnier J, Dickinson HO, Beckung E, Marcelli M, McManus V, Michelsen SI, et al. Participation in life situations of 8-12 year old children with cerebral palsy: cross sectional European study. BMJ. 2009; 338:b1458.