Korean J Gastroenterol.  2022 Dec;80(6):241-246. 10.4166/kjg.2022.146.

Patient’s Clinical User Experience in Gastroenterology

• Kim ES

• KMID: 2537094
• DOI: http://doi.org/10.4166/kjg.2022.146

Abstract

As clinical practices change to involve patients more actively and patient feedback becomes integrated into ongoing measures of quality, patients themselves, along with their families and friends, could play a creative part in crafting solutions to improve patient’s experience. We could convene focus groups of patients to help examine varied aspects of our practice, ranging from the flow through our offices to the way we communicate. They could work with us, helping us make choices and set priorities. Incorporating both patients' perceptions and suggestions for change can address clinically significant aspects of the patient experience, foster the involvement of patients in their care, and help assess and improve the quality of the care we deliver. The electronic medical record and secure patient portals increasingly provide a powerful opportunity to actively promote patient involvement. Improving of patient’s experience can help doctors draw closer to their patients and restore and strengthen public trust. It can both improve the quality of our care and add to the joy of being a doctor. Our purpose is to improve patients' treatment results, and through this, to feel rewarding as a doctor as a professional and to continue working as a doctor. To this end, improving the doctor-patient relationship through improving patient experience can be a key factor.

Keyword

User experience; Patients; Open notes

Reference

1. Matthews DA, Feinstein AR. 1988; A review of systems for the personal aspects of patient care. Am J Med Sci. 295:159–171. DOI: 10.1097/00000441-198803000-00001. PMID: 3354589.

2. Delbanco TL. 1992; Enriching the doctor-patient relationship by inviting the patient's perspective. Ann Intern Med. 116:414–418. DOI: 10.7326/0003-4819-116-5-414. PMID: 1736775.

3. Brook RH, McGlynn EA, Cleary PD. 1996; Quality of health care. part 2: measuring quality of care. N Engl J Med. 335:966–970. DOI: 10.1056/NEJM199609263351311. PMID: 8782507.

4. Cleary PD, Edgman-Levitan S, Roberts M, et al. 1991; Patients evaluate their hospital care: a national survey. Health Aff (Millwood). 10:254–267. DOI: 10.1377/hlthaff.10.4.254. PMID: 1778560.

5. Allshouse KD. Gerteis M, Edgman-Levitan S, Daley J, Delbanco TL, editors. 1993. Treating patients as individuals. Through the patient's eyes: understanding and promoting patient-centered care. 1st ed. Jossey-Bass;San Francisco: p. 19–44.

6. O'Connor AM, Légaré F, Stacey D. 2003; Risk communication in practice: the contribution of decision aids. BMJ. 327:736–740. DOI: 10.1136/bmj.327.7417.736. PMID: 14512487. PMCID: PMC200814.

7. Politi MC, Han PK, Col NF. 2007; Communicating the uncertainty of harms and benefits of medical interventions. Med Decis Making. 27:681–695. DOI: 10.1177/0272989X07307270. PMID: 17873256.

8. OpenNotes. [internet]. Available from: https://www.opennotes.org/. Boston (MA): OpenNotes;cited 2022 Mar 24.

9. Gerteis M. Gerteis M, Edgman-Levitan S, Daley J, Delbanco TL, editors. 1993. Coordinating care and integrating services. Through the patient's eyes: understanding and promoting patient-centered care. 1st ed. Jossey-Bass;San Francisco: p. 45–71.

10. Edgman-Levitan S. Gerteis M, Edgman-Levitan S, Daley J, Delbanco TL, editors. 1993. Providing effective emotional support. Through the patient's eyes: understanding and promoting patient-centered care. 1st ed. Jossey-Bass;San Francisco: p. 154–177.

11. Daley J. Gerteis M, Edgman-Levitan S, Daley J, Delbanco TL, editors. 1993. Overcoming the barrier of words. Through the patient's eyes: understanding and promoting patient-centered care. 1st ed. Jossey-Bass;San Francisco: p. 72–95.

12. Krasner MS, Epstein RM, Beckman H, et al. 2009; Association of an educational program in mindful communication with burnout, empathy, and attitudes among primary care physicians. JAMA. 302:1284–1293. DOI: 10.1001/jama.2009.1384. PMID: 19773563.

13. Hoffmann TC, Montori VM, Del Mar C. 2014; The connection between evidence-based medicine and shared decision making. JAMA. 312:1295–1296. DOI: 10.1001/jama.2014.10186. PMID: 25268434.

14. Fahey T, NicLiam B. 2014; Assembling the evidence for patient centred care. BMJ. 349:g4855. DOI: 10.1136/bmj.g4855. PMID: 25239615.

15. Elwyn G, Cochran N, Pignone M. 2017; Shared decision making-the importance of diagnosing preferences. JAMA Intern Med. 177:1239–1240. DOI: 10.1001/jamainternmed.2017.1923. PMID: 28692733.

16. Levine DM, Landon BE, Linder JA. 2017; Trends in patient-perceived shared decision making among adults in the United States, 2002-2014. Ann Fam Med. 15:552–556. DOI: 10.1370/afm.2132. PMID: 29133495. PMCID: PMC5683868.

17. Iezzoni LI. 2006; Going beyond disease to address disability. N Engl J Med. 355:976–979. DOI: 10.1056/NEJMp068093. PMID: 16957143.

18. Stern AL, MacRae S, Gerteis M, et al. 2003; Understanding the consumer perspective to improve design quality. J Archit Plann Res. 20:16–28.

19. Ellers B. Gerteis M, Edgman-Levitan S, Daley J, Delbanco TL, editors. 1993. Involving and supporting family and friends. Through the patient's eyes: understanding and promoting patient-centered care. 1st ed. Jossey-Bass;San Francisco: p. 178–203.

20. Ellers B, Walker JD. Gerteis M, Edgman-Levitan S, Daley J, Delbanco TL, editors. 1993. Facilitating the transition out of the hospital. Through the patient's eyes: understanding and promoting patient-centered care. 1st ed. Jossey-Bass;San Francisco: p. 204–226.

21. Delbanco TL. Gerteis M, Edgman-Levitan S, Daley J, Delbanco TL, editors. 1993. Promoting the doctor's involvement in care. Through the patient's eyes: understanding and promoting patient-centered care. 1st ed. Jossey-Bass;San Francisco: p. 260–279.

22. Stalberg P, Yeh M, Ketteridge G, Delbridge H, Delbridge L. 2008; E-mail access and improved communication between patient and surgeon. Arch Surg. 143:164–168. discussion 168–169. DOI: 10.1001/archsurg.2007.31. PMID: 18283141.

23. Ralston JD, Martin DP, Anderson ML, et al. 2009; Group health cooperativés transformation toward patient-centered access. Med Care Res Rev. 66:703–724. DOI: 10.1177/1077558709338486. PMID: 19549993.

24. Delbanco S, Delbanco T. 2018; Technology and transparency: empowering patients and clinicians to improve health care value. Ann Intern Med. 168:585–586. DOI: 10.7326/M17-3269. PMID: 29507941.

25. DesRoches CM, Bell SK, Dong Z, et al. 2019; Patients managing medications and reading their visit notes: a survey of OpenNotes participants. Ann Intern Med. 171:69–71. DOI: 10.7326/M18-3197. PMID: 31132794.

26. Walker J, Ahern DK, Le LX, Delbanco T. 2009; Insights for internists: "I want the computer to know who I am". J Gen Intern Med. 24:727–732. DOI: 10.1007/s11606-009-0973-1. PMID: 19412641. PMCID: PMC2686773.

27. Delbanco T, Walker J, Darer JD, et al. 2010; Open notes: doctors and patients signing on. Ann Intern Med. 153:121–125. DOI: 10.7326/0003-4819-153-2-201007200-00008. PMID: 20643992.

28. Delbanco T, Walker J, Bell SK, et al. 2012; Inviting patients to read their doctors' notes: a quasi-experimental study and a look ahead. Ann Intern Med. 157:461–470. DOI: 10.7326/0003-4819-157-7-201210020-00002. PMID: 23027317. PMCID: PMC3908866.

29. Walker J, Leveille S, Bell S, et al. 2019; OpenNotes after 7 years: patient experiences with ongoing access to their clinicians' outpatient visit notes. J Med Internet Res. 21:e13876. DOI: 10.2196/13876. PMID: 31066717. PMCID: PMC6526690.

30. Gerard M, Fossa A, Folcarelli PH, Walker J, Bell SK. 2017; What patients value about reading visit notes: a qualitative inquiry of patient experiences with their health information. J Med Internet Res. 19:e237. DOI: 10.2196/jmir.7212. PMID: 28710055. PMCID: PMC5533943.