Osong Public Health Res Perspect.  2016 Dec;7(6):394-399. 10.1016/j.phrp.2016.11.001.

Illness Experience of Patients with Chronic Hepatitis C Participating in Clinical Trials

Affiliations
  • 1Division of Gastroenterology, Clinical Research Center, Pusan National University Hospital, Busan, Korea
  • 2Department of Nursing, Pukyong National University, Busan, Korea

Abstract


Objectives
To understand the illness experience of patients with chronic hepatitis C participating in clinical trials in the sociocultural context of Korea in an in-depth and comprehensive manner.
Methods
A focused ethnography approach was used to discover the pattern of illness experience of patients with chronic hepatitis C in the cultural background of Korea. Interviews were conducted with 11 patients with chronic hepatitis C participating in clinical trials and the collected data were analyzed with the domain analysis, taxonomical analysis, componential analysis, and theme analysis proposed by Spradley.
Results
With the cultural theme of “less-known illness, less-familiar illness,” four categories were derived: “my illness discovered by accident,” “shaken life,” “scary but inevitable treatment method,” and “precious life that can't be wasted,” along with 12 properties.
Conclusion
Public campaigns or education programs are needed to meet the needs for information on the disease for patients with chronic hepatitis C participating in clinical trials and help the general public acquire knowledge or change view on this disease.

Keyword

chronic hepatitis C; clinical trials; experience
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