J Korean Neurol Assoc.  2021 May;39(2 Suppl):93-109. 10.17340/jkna.2021.2.24.

Health-related quality of Life Instrument in Neuromuscular Disorders

• Kwon O

• KMID: 2515635
• DOI: http://doi.org/10.17340/jkna.2021.2.24

Abstract

Medicine places its ultimate purpose at prolonging people’s healthy lives. Health-related quality of life (HRQoL) has emerged as one of the key measures of medical practice. HRQoL, the most important patient-reported outcome, should include not only functional status and disability as result of a disease but also patient’s handicaps and restriction of social participation as result of the disease. Neuromuscular disorders as a whole comprise of wide constellation of various symptoms and signs, which in turn, affect negative influence on patients’ functional status, psychological well-being, and tend to restrict patients’ financial and social achievement. The most influential HRQoL measures, either generic or neuromuscular disease-specific, will be presented and discussed. Medical Outcomes Study Short Form 36-Item, EuroQoL-5 Dimensions, Individualized Neuromuscular QoL Questionnaire, Norfolk Quality of Life Questionnaire-Diabetic Neuropathyare among the lists.

Keyword

Neuromuscular diseases; Patient reported outcome measures; Quality of life