Korean J Adult Nurs.  2019 Feb;31(1):14-27. 10.7475/kjan.2019.31.1.14.

Comparing the Needs of Family Caregivers and Program Providers in Long-Term Care in Terms of Family Support Program

Affiliations
  • 1Professor, College of Nursing, Chungnam National University, Daejeon, Korea.
  • 2Doctoral Student, College of Nursing, Chungnam National University, Daejeon, Korea. annuhbung@naver.com
  • 3Research Fellow, Institute for National Health Insurance Policy Research, NHIS, Seoul, Korea.

Abstract

PURPOSE
This study aimed to compare the needs of family caregivers and program providers in family support program by exploring perspectives about the program in the long-term care system.
METHODS
This was a secondary analysis study using the content analysis method. The data of 11 family caregivers and 7 program providers that were collected from focus group interviews in two primary studies were used. Each data was collected in April and May 2015. The units of analysis were dyads of family caregivers and program providers.
RESULTS
The data were deductively analyzed within three main categories: program purpose, program content, and program method. Within the main categories, ten subcategories represented the essential elements for developing a family support program. There were differences between family caregivers and program providers in terms of the contents and intentions of the family support program. Family caregivers wanted to receive help from the family support program in a passive manner, while program providers expected the family support program to improve families' ability to solve their own problems.
CONCLUSION
Based on the results of this study, it is important to establish the strategies of customized and flexible program considering the needs of the caregivers to make family support program more effective. Further, it is necessary to fill the gap between the needs of the two groups and focus on family-centered approaches to conduct family support program more effectively.


MeSH Terms

Caregivers*
Family Nursing
Focus Groups
Humans
Intention
Long-Term Care*
Methods
Needs Assessment

Reference

1. Statistics Korea. 2018 statistics on the aged [Internet]. Seoul: Statistics Korea;2018. [cited 2019 January 10]. Available from:. http://kostat.go.kr/portal/korea/kor_nw/1/6/1/index.board?bmode=read&bSeq=&aSeq=370779&pageNo=1&rowNum=10&navCount=10&currPg=&sTarget=title&sTxt=.
2. Lee JW, Jin HS. A study on problems and improvement of home-help services of longterm care insurance. Journal of the Korean Gerontological Society. 2009; 29(1):149–75.
3. Kim J, Kim H. Effects of home care services use by older adults on family caregiver distress. Journal of Korean Academy of Nursing. 2016; 46(6):836–47. https://doi.org/10.4040/jkan.2016.46.6.836.
Article
4. Yang NJ, Choi IH. The impact of the Korean longterm care insurance system on its family caregivers: focusing on family caregiving arrangement. Korean Journal of Social Welfare Studies. 2013; 44(3):31–56. https://doi.org/10.16999/kasws.2013.44.3.31.
5. Jung KH, Oh YH, Kang EN, Kim JH, Seon WD, Oh MH, et al. Korean geriatric survey report 2014 [Internet]. Seoul: Ministry for Health &Welfare;2014. [cited 2018 October 13]. Available from:. https://wish.welfare.seoul.kr/upload/data/_20150409150150361.pdf.
6. Colombo F, Llena-Nozal A, Mercier J, Tjadens F. Help wanted? Providing and paying for longterm care (OECD health policy studies). 1st ed.Paris: OECD Publishing;2011. https://doi.org/10.1787/9789264097759-en.
7. Choi IH, Kim EJ, Chung SY, Yang NJ. The impact of the Korean longterm care insurance system on the beneficiaries and their family caregivers: focusing on quality of life and family relationships. Seoul: Korean Women's Development Institute;2011. p. 1–283.
8. Choi IH, Kim YR, Lee AR, Park SA. Family caregiving in an aging society: evaluation of the current family support system and policy implications. Seoul: Korean Women's Development Institute;2011. p. 1–106.
9. Rivera D, Perrin PB, Senra H, Reyes CJD, Olivera SL, Villaseñor T, et al. Development of the family needs assessment tool for caregivers of individuals with neurological conditions in Latin America. Psicología Desde El Caribe. 2013; 30(1):1–20.
10. Feinberg L, Houser A. Assessing family caregiver needs: policy and practice considerations [Internet]. Washington, DC: American Association of Retired Persons Public Policy Institute;;c2012. cited 2018 April 26. Available from:. http://www.caregiving.org/wp-content/uploads/2010/11/AARP-caregiver-fact-sheet.pdf.
11. Pauley T, Chang BW, Wojtak A, Seddon G, Hirdes J. Predictors of caregiver distress in the community setting using the home care version of the resident assessment instrument. Professional Case Management. 2018; 23(2):60–9. https://doi.org/10.1097/NCM.0000000000000245.
Article
12. Cho YH, Kim GU. Family caregivers' burden and needs for a professional help by the symptom level of the elderly with dementia. Journal of the Korean Gerontological Society. 2010; 30(2):369–83.
13. Fernandes CS, Angelo M. Family caregivers: what do they need? An integrative review. Journal of School of Nursing. 2016; 50(4):627–8. https://doi.org/10.1590/S0080-623420160000500019.
Article
14. Oh MH, Park KM. The effect of social support program on family caregivers' role strain in elderly longterm home care. Journal of Korean Academy of Community Health Nursing. 2014; 25(2):137–45. https://doi.org/10.12799/jkachn.2014.25.2.137.
15. Yoo KS, So ES. The effectiveness of dementia education for the nursing method of family caregivers of the demented elderly. Journal of Korean Academy of Community Health Nursing. 2014; 25(2):97–108. https://doi.org/10.12799/jkachn.2014.25.2.97.
Article
16. Sörensen S, Conwell Y. Issues in dementia caregiving: effects on mental and physical health, intervention strategies, and research needs. The American Association for Geriatric Psychi-atry. 2011; 19(6):491–6. https://doi.org/10.1097/JGP.0b013e31821c0e6e.
Article
17. Jeong YM, Park JS, Kim MA. Comparison of need for counseling between elders and professional staff. Journal of Korean Gerontological Nusing. 2010; 12(3):256–64.
18. Abdullah S, Kousar R, Azhar M, Waqus A. Nurses' and patients' perception regarding nurse caring behaviors and patients satisfaction in Sir Ganga Ram hospital, Lahore, Pakistan. International Annals of Medicine. 2017; 1(5):1–8.
Article
19. Park MH, Kim SE, Lee S, Cho SK, Yu JC, Choi HK. Development of longterm care family support program manual. 1st ed.Daejeon: Chungnam National University Industry-Acade-mia Collaboration Foundation;2015.
20. Yi MS. Secondary analysis: focusing on qualitative research. Journal of Korean Academy of Nursing. 2004; 34(1):35–44. https://doi.org/10.4040/jkan.2004.34.1.35.
Article
21. Yi MS. Secondary analysis of qualitative data: methodological issues and implications. Korean Association for Qualititative Research. 2003; 12(1):82–96.
22. Harris H. Content analysis of secondary data: a study of cour-age in managerial decision making. Journal of Business Ethics. 2001; 34(3-4):191–208.
23. Elo S, Kyngäs H. The qualitative content analysis process. Journal of Advanced Nursing. 2008; 62(1):107–15. https://doi.org/10.1111/j.1365-2648.2007.04569.x.
Article
24. Robson C. Real world research: a resource for social scientists and practitioner-researchers. 7th ed.Oxford: Blackwell Publishing;1993. p. 1–587.
25. Lincoln YS, Guba EG. Naturalistic inquiry. Newbury Park, CS: Sage;1985.
26. Sandelowski M. The problem of rigor in qualitative research. Advanced in Nursing Science. 1986; 8(3):27–37. https://doi.org/10.1097/00012272-198604000-00005.
Article
27. Han EJ, Na YK, Lee JS, Kwon JH. Factors to influence the family caregivers' burden with the community-dwelling elderly under longterm care insurance system: comparison among sub-dimensions. Korea Social Policy Review. 2015; 22(2):61–96.
28. Martínez KG, Pérez EA, Ramírez R, Canino G, Rand C. The role of caregivers' depressive symptoms and asthma beliefes on asthma outcomes among low-income Puerto Rican child-ren. Journal of Asthma. 2009; 46(2):136–41. https://doi.org/10.1080/02770900802492053.
29. Jeong WC. Recognition of service needs of the mentally III and the mental service providers and factors affecting service needs of the mentally III in community mental rehabilitation center. Korea Academy of Mental Health Social Work. 2003; 12(16):156–79.
30. Toseland RW, Haiger DH, Monahan DJ. Education and support programs for caregivers. 1st ed. Seoul: Hana Medical Publishing;2013. p. 205–30.
31. Yun EG, Jo YD. The effect of primary caregivers' guilt feelings on their request behaviors for help with caring. Journal of the Korean Gerontological Society. 2008; 28(4):1249–64.
32. Han EJ, Lee JM, Cho JW, Kim DH. Improvement plan of longterm care service utilization support system. Wonju: Health Insurance Policy Institute;2012. p. 1–273.
33. Belle SH, Burgio L, Burns R, Coon D, Czaja SJ, Gallagher- Thompson D, et al. Enhancing the quality of life of dementia caregivers from different ethnic or racial groups: a randomized, controlled trial. Annals of Internal Medicine. 2006; 145(10):727–38. https://doi.org/10.7326/0003-4819-145-10-200611210-00005.
34. Oh JJ. A comparative study on the effects of an individual intervention program and a group intervention program on the demented elderly and their families. Journal of Korean Academy of Community Health Nursing. 2008; 19(2):205–15.
35. Kim C-G, Kwon MS, Lee YH. Experiences of family caregivers utilizing care support of dementia center. Korean Journal of Adult Nursing. 2018; 30(3):314–24. https://doi.org/10.7475/kjan.2018.30.3.314.
Article
Full Text Links
  • KJAN
Actions
Cited
CITED
export Copy
Close
Share
  • Twitter
  • Facebook
Similar articles
Copyright © 2024 by Korean Association of Medical Journal Editors. All rights reserved.     E-mail: koreamed@kamje.or.kr