Asian Nurs Res.  2017 Sep;11(3):207-215. 10.1016/j.anr.2017.08.004.

Nurses' Experiences of End-of-life Care in Long-term Care Hospitals in Japan: Balancing Improving the Quality of Life and Sustaining the Lives of Patients Dying at Hospitals

Affiliations
  • 1Department of Nursing and Laboratory Science, Graduate School of Medicine, Yamaguchi University, Yamaguchi, Japan. odachi@yamaguchi-u.ac.jp
  • 2Division of Health Sciences, Graduate School of Medicine, Osaka University, Osaka, Japan.
  • 3Department of Nursing, School of Nursing, Mukogawa Women's University, Nishinomiya, Japan.
  • 4Department of Nursing, Shiga University of Medical Science, Shiga, Japan.
  • 5Department of Medical Ethics, Tohoku University Graduate School of Medicine, Miyagi, Japan.
  • 6Division of Environmental Medicine and Population Sciences, Department of Social and Environmental Medicine, Graduate School of Medicine, Osaka University, Osaka, Japan.

Abstract

PURPOSE
In Japan, about 80% of deaths occur in hospitals, especially long-term care beds. The purpose of this study was to clarify the nursing practices used for such older patients at the end-of-life stage in long-termcare wards via the modified grounded theory approach (M-GTA).
METHODS
Data were obtained through semi-structured interviews of nineteen nurses working in cooperating long-term care wards, acute care wards, or hospice services (to allow for constant comparison between these types of wards) in western Japan in 2014. We analyzed the transcribed data using M-GTA.
RESULTS
The core category that emerged from the analysis was "Balancing enhancement of patients' daily life quality and life-sustaining care in the face of uncertainty about the patients' character." Eleven categories emerged, such as Seeking older patients' character with their family, Supporting families' decision making, Rebuilding patients' daily life in the ward, and Sustaining patients' life span through medical care.
CONCLUSIONS
Nurses experienced uncertainty about the care needs of older patients, the ethical problems of Enhancing the patients' QOL by using risky care, and the evaluation criteria used to judge their own nursing care after the patients' death. All nurses had the goal of ensuring a natural death for all patients. Nurses' acceptance and evaluation of their own care was critically influenced by the patient's family's responses to their care after patients' death. Further research is necessary to develop evaluation criteria and educational programs for end-of-life nursing care of older adults.

Keyword

terminal care; aged; long-term care; qualitative research

MeSH Terms

Adult
Decision Making
Grounded Theory
Hospices
Humans
Japan*
Long-Term Care*
Nursing
Nursing Care
Qualitative Research
Quality of Life*
Terminal Care
Uncertainty
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