J Korean Acad Nurs.  2013 Oct;43(5):636-648. 10.4040/jkan.2013.43.5.636.

Health-Illness Transition of Patients with Young-Onset Parkinson's Disease

• Kim SR
• Lee SJ

• KMID: 1707165
• DOI: http://doi.org/10.4040/jkan.2013.43.5.636

Abstract

PURPOSE
The purpose of this study was to explore the health-illness transition of patients with Young-Onset Parkinson's Disease (YOPD).
METHODS
From June to November 2011, 17 patients with YOPD who visited a neurologic clinic in a tertiary hospital participated in the study. Data were collected through in-depth interviews and analyzed using the grounded theory of Strauss and Corbin.
RESULTS
The core category of the participants' health-illness transition emerged as 'reshaping identity following uncontrollable changes'. The participants' health-illness transition process consisted of six phases in sequence: ego withdrawal, loss of role, frustration, change of thought, modification of life tract, and second life. Although most participants proceeded through the six phases chronologically, some returned to the frustration phase and then took up the remaining phases.
CONCLUSION
The study results provide an in-depth understanding of health-illness transition experiences in the participants. These findings suggest a need to develop appropriate nursing intervention strategies according to the different phases in the health-illness transition of patients with YOPD.

Keyword

Parkinson disease; Qualitative research; Transition

MeSH Terms

*Adaptation, Physiological
Adult
Age of Onset
Female
Humans
Interviews as Topic
Laughter Therapy
Male
Middle Aged
Parkinson Disease/*psychology
Patient Acceptance of Health Care
Self Concept
Social Isolation

Figure

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  Figure 1 Health-illness transition process of patients with Young-Onset Parkinson's Disease: Reshaping identity following uncontrollable changes.

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