Intest Res.  2018 Oct;16(4):537-545. 10.5217/ir.2018.00041.

IBD2020 global forum: results of an international patient survey on quality of care

Affiliations
  • 1Department of Gastroenterology, Guy's and St Thomas' NHS Foundation Trust, London, UK.
  • 2Digestive Disease Centre, Medical Section, Herlev University Hospital, Copenhagen, Denmark.
  • 3New Barnet, Greater London, UK.
  • 4Kairos Future, Stockholm, Sweden.
  • 5Strategen Limited, Basingstoke, UK.
  • 6Translational Gastroenterology Unit, Oxford University Hospitals, Oxford, UK. simon.travis@ndm.ox.ac.uk

Abstract

BACKGROUND/AIMS
IBD2020 is a global forum for standards of care in inflammatory bowel disease (IBD). The aim of the IBD2020 survey was to identify and describe variations in quality care of IBD.
METHODS
Patients with IBD from Finland, Italy, France, Canada, Germany, UK, Spain and Sweden were surveyed during 2013 to 2014, covering: disease characteristics; impact on life and work; organization and perceived quality of care.
RESULTS
Seven thousand five hundred and seven patients participated (median age, 39 years [range, 10-103 years]; 2,354 male [31.4%]), including 4,097 (54.6%) with Crohn's disease (CD) and 3,410 (45.4%) with ulcerative colitis (UC). Median time from symptom onset to diagnosis was 1 year for both CD (range, 0-47 years) and UC (range, 0-46 years), with no clear evidence of improvement in diagnostic delay over the preceding 24 years. Half of the patients (3,429; 50.0%) rated their care as "excellent" or "very good," with similar results for CD and UC across countries. Five factors were significantly (P < 0.01) associated with perceived good quality of care: quality of specialist communication; review consultation being long enough; failure to share information; no access to a dietician; speed of advice.
CONCLUSIONS
The IBD2020 survey has highlighted areas related to quality of care of IBD from the patients' perspective, with scope for improvement.

Keyword

Inflammatory bowel disease; Crohn disease; Colitis, ulcerative; Surveys and questionnaires; Quality of health care

MeSH Terms

Canada
Colitis, Ulcerative
Crohn Disease
Diagnosis
Finland
France
Germany
Humans
Inflammatory Bowel Diseases
Italy
Male
Nutritionists
Quality of Health Care
Spain
Specialization
Standard of Care
Surveys and Questionnaires
Sweden
Full Text Links
  • IR
Actions
Cited
CITED
export Copy
Close
Share
  • Twitter
  • Facebook
Similar articles
Copyright © 2022 by Korean Association of Medical Journal Editors. All rights reserved.     E-mail: koreamed@kamje.or.kr