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Pediatr Gastroenterol Hepatol Nutr.  2016 Sep;19(3):162-167. 10.5223/pghn.2016.19.3.162.

Socioeconomic Impacts of Gluten-Free Diet among Saudi Children with Celiac Disease

Affiliations
  • 1Division of Gastroenterology, Department of Pediatrics, King Khalid University Hospital, King Saud University, Riyadh, Saudi Arabia. aalsarkhy@ksu.edu.sa
  • 2Prince Abdullah Bin Khalid Celiac Disease Research Chair, College of Medicine, King Saud University, Riyadh, Saudi Arabia.
  • 3Division of Gastroenterology, Department of Pediatrics, King Abdulaziz Medical City, National Guard Health Affairs, Riyadh, Saudi Arabia.
  • 4Division of Gastroenterology, Department of Pediatrics, King Faisal Specialist Hospital and Research Center, Jeddah, Saudi Arabia.
  • 5Consultant Epidemiologist, College of Medicine, King Saud University, Riyadh, Saudi Arabia.

Abstract

PURPOSE
To determine the socio-economic impact of gluten free diet (GFD) on Saudi children and their families.
METHODS
A cross-sectional study was conducted in which an online questionnaire was sent to all families registered in the Saudi celiac patients support group. We included only children (age 18 years of age and younger) with biopsy-confirmed celiac disease (CD).
RESULTS
A total of 113 children were included in the final analysis, the median age was 9.9 years; 62.8% were females. One hundred (88.5%) of the participating families reported that GFD food was not easily available in their areas, 17% of them reported that it was not available at all in their area. One hundred and six (93.8%) reported that the price of GFD food was very expensive and 70 (61.9%) families that the diet was heavily affecting their family budget. Significant social difficulties were reported among the participating families and their children including interference with the child's interaction with other children (49.6%), the families' ability to attend social gatherings (60.2%), the families' ability to eat in restaurants (73.5%), and the families' ability to travel (58.4%).
CONCLUSION
There is significant negative socio-economic impact of GFD on children with CD & their families. Health care providers should be aware of these psycho-social difficulties and be well trained to provide a proper education and psychological support for these patients and their families.

Keyword

Celiac disease; Diet; Gluten-free diet; Economics; Child; Saudi Arabia

MeSH Terms

Budgets
Celiac Disease*
Child*
Cross-Sectional Studies
Diet
Diet, Gluten-Free*
Education
Female
Health Personnel
Humans
Only Child
Restaurants
Saudi Arabia
Self-Help Groups
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